PUBLICATIONS

Saori Watanabe, Kaori Muto, Hideki Yui, et al. Awareness and perceptions of patient and public involvement in rare disease research in Japan: the role of patient advocacy groups and family members. Research Involvement and Engagement, 12(1), 2026.

doi:10.1186/s40900-026-00955-9

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Barnes M, Bledsoe M, Kusunose M, Lawlor R, Morrin H, Schmid A. International Ethical Principles for Banking and Secondary Research Use of Human Biospecimens and Associated Data: The Seattle Principles. Journal of Law, Medicine & Ethics. Published online 2026:1-9.

doi:10.1017/jme.2026.10252

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